HKNC Connection

A Message from the Regional Representative

As we move into Fall, I wanted to share some of the work happening across the New England Region. Over the past several months, the New England has continued to strengthen partnerships, expand training opportunities, support systems, change efforts, and create meaningful opportunities for DeafBlind individuals and the professionals who serve them.

This work continues to happen because of the strong collaboration among community partners, state agencies, service providers, advocates, and DeafBlind leaders who work alongside us to build a more accessible and inclusive New England.

Together, we are increasing awareness, expanding access, and creating stronger pathways to independence, employment, community involvement, and lifelong learning.

Strengthening Partnerships Across New England

One highlight this quarter has been the continued growth of HKNC’s partnership with the New England Home for the Deaf (NEHD). The collaboration focuses on increasing communication access and strengthening staff knowledge to better support DeafBlind residents. Through online learning modules, hands-on training, and ongoing consultation, the goal is to create support that lasts beyond one training event. The next phase will include on-site training led by HKNC’s DeafBlind Older Adult Specialist, giving staff practical strategies they can use right away.

The HKNC New England Region has also continued to collaborate closely with vocational rehabilitation agencies, community organizations, and state partners throughout Connecticut, Massachusetts, New Hampshire, Rhode Island, and Vermont to improve access to services and strengthen referral pathways for DeafBlind individuals.

Leading DeafBlind Awareness Efforts

Planning for Massachusetts DeafBlind Awareness Day was a major focus throughout August and September.

The HKNC New England Region actively collaborated with DeafBlind community members, community leaders, and partner organizations, including the Massachusetts Commission for the Blind (MCB), Massachusetts Commission for the Deaf and Hard of Hearing (MCDHH), New England Consortium on DeafBlindness (NEC), Carroll Center for the Blind, and DeafBlind Community Access Network (DBCAN), to organize this important statewide event.

People seated around tables and standing in small groups in a spacious hall with arched doorways and hanging banners.

The annual event took place on October 8, 2026, at the Massachusetts State House and brought together community members, professionals, advocates, and government leaders to celebrate the contributions and accomplishments of DeafBlind individuals throughout Massachusetts. The purpose of this event was to raise public awareness, increase visibility, and highlight the importance of communication access, inclusive services, and meaningful community participation for people who are DeafBlind. It also provided an opportunity for DeafBlind community members and their allies to connect directly with state representatives, share lived experiences and reinforce the need for continued collaboration across state agencies, service providers, and community organizations. Over 100 people attended and interacted with their state representatives. The event was a great success, and HKNC looks forward to continuing this important work next year.

Community Connection in Action

Community engagement continues to be a cornerstone of HKNC’s work. Throughout the summer and early fall, the HKNC New England Region supported a variety of events that brought together DeafBlind individuals, families, professionals, and community partners.

Some of our activities included:

• Sponsored the Northeastern University and DBCAN Protactile Workshop

• Participated in the DBCAN 25th Anniversary Cookout

• Celebrated at the NEHD Helen Keller Birthday Event

• Region 1 staff supported several DeafBlind individuals as volunteer SSPs at the Connecticut Deaf Expo in June and as volunteer SSPs at the Massachusetts State Fair- “The Big E” in July.

These events provided opportunities to build relationships, foster communication access, share resources, and celebrate DeafBlind culture and community.

Advocacy and Leadership

The HKNC New England Region continues to play an active role in statewide advisory efforts.
This quarter included ongoing participation in the New Hampshire Program for the Deaf and Hard of Hearing Advisory Committee, where work focused on improving governance, accessibility, attendance procedures, and member participation. The HKNC New England Region contributed to the development and revision of committee bylaws designed to strengthen long-term effectiveness and accessibility.

This work reflects HKNC’s commitment not only to direct services but also to systems-level advocacy that strengthens opportunities for DeafBlind individuals throughout New England.

Looking Ahead: Upcoming Events

NE/AER 2026 Conference
November 4-6, 2026 | Portsmouth, New Hampshire

This year’s conference theme, Bridging the Gap, brings together professionals from across the Northeast to explore topics including DeafBlind services, assistive technology, employment, transition, orientation and mobility, literacy, recreation, and independent living.

To register, complete the NE/AER 2026 registration form (opens in a new tab)
NEC Introduction to DeafBlindness Series

Hosted by the New England Consortium on DeafBlindness in collaboration with UMass Boston’s Institute for Community Inclusion.

• Session 4: The Importance of Tactile/Touch Strategies for Learners Who are Deafblind, November 4, 2026, 3:15–4:45 PM EST | Session 4 Registration (opens in a new tab)

• Session 5: Developing and Implementing Literacy Lessons with Learners who are Deafblind, November 18, 2026, 3:15–4:30 PM EST | Session 5 Registration (opens in a new tab)

• Session 6: High-Quality Practices for Learners with Extensive Support Needs, Including Deafblindness, December 9, 2026, 3:15–4:30 PM EST | Session 6 Registration (opens in a new tab)
  

To register or learn more about NEC trainings and professional development opportunities (opens in a new tab). For questions, contact Tracy Evans Luiselli at tracy.luiselli@perkins.org (opens in a new tab)tracy.luiselli@perkins.org (opens in a new tab)

Connecticut Blind and Low Vision Support Group
Hosted by UR Community Cares.

To sign up or learn more about upcoming UR Community Cares support group meetings, contact UR Community Cares directly through their website www.urcommunitycares.org (opens in a new tab)

Introducing Our New Administrative Assistant

Headshot of Tasha Cruz, she is smiling with short, curly red hair and black jeweled cat-eye glasses. She is wearing a navy-blue blouse with a large bow tied at her throat.

Hello, everyone!

Please join us in welcoming Tasha Cruz, the new Administrative Assistant supporting Region 1, New England, and Region 6, South Central, at Helen Keller National Center.

Tasha brings a diverse background in executive administration, project coordination, and organizational support, with experience working alongside nonprofit organizations, community leaders, and business professionals. Throughout her career, she has developed a passion for creating efficient processes, strengthening communication, and helping organizations operate more effectively.

As she begins this new chapter with HKNC, Tasha is looking forward to learning more about the DeafBlind community, building meaningful relationships with individuals, families, colleagues, and community stakeholders across both regions, and supporting the important work being done every day.

On a personal note, Tasha is originally from the South Bronx in New York and now lives in Hartford, Connecticut, with her two cats, Johnny Manolo and Mikey Sinatra, who keep things entertaining. Outside of work, she enjoys cooking, baking, painting, attending plays and Broadway shows, and exploring local farmers markets. Fall is her favorite time for scenic drives, enjoying the foliage, and finding little moments to slow down with a good tea or coffee.

Tasha is excited to learn, contribute, and grow alongside the HKNC team!
Email: tcruz@helenkeller.org (opens in a new tab)
Voice/Text: (516) 460-6702

Thank you to all of our community partners, consumers, families, educators, rehabilitation professionals, advocates, and DeafBlind leaders who continue to make this work possible. Together, we are strengthening partnerships, advancing accessibility, and creating more opportunities for DeafBlind individuals across New England.

Christine Telford ctelford@helenkeller.org (opens in a new tab)
Regional Representative, Helen Keller National Center, New England Region

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Welcome to the Mid-Atlantic Region 2 Roundup!

Eleanor Coley-Brody, Regional Representative for NY and NJ

Contact: 516-570-3634 (VP) or email: ecoley-brody@helenkeller.org (opens in a new tab)

Did you know that HKNC has a National Registry, which is a confidential national database that helps connect DeafBlind individuals to services and for data collection to help support the expansion of more DeafBlind programming and services.  Please register with us here to register with the HKNC National Registry (opens in a new tab) and if you are looking for a HKNC contact in another state for yourself or a loved one, you can visit our map (opens in a new tab).

Usher Syndrome Awareness Day

On September 19, 2026, the Usher syndrome community came together at Heckscher Playground Lawn in New York City’s Central Park to recognize Usher Syndrome Awareness Day.

The event was organized by three individuals with personal connections to the Usher syndrome community: Michele Tamasi, Mikaela Zito, and Carolyn Bradfield, as well as support from HKNC Regional Representative, Eleanor Coley-Brody.

Community members who helped organize the event shared what the day meant to them. Their reflections appear below.

Carolyn Bradfield shared:

For me, USHday is about the power of community and connection. I have Usher syndrome, but it wasn’t until just two years ago that I connected with another person who shared the same diagnosis. That moment changed so much for me. I realized how meaningful it is to meet others who truly understand the unique experiences, challenges, and emotions that come with navigating life with Usher syndrome.

My goal for USHday was to create the kind of connection I wish I had found sooner, a casual, welcoming day where individuals with Usher syndrome and their families could come together, meet one another, share experiences, and simply enjoy being surrounded by people who “just get it.” There was no pressure or expectation, just an opportunity to connect, build relationships, and remind each other that we are not navigating this journey alone.

The biggest takeaway for me is simple: community matters. Connection matters. And sometimes, just knowing someone else “just gets it” can make all the difference.

Michele Tamasi shared:

To sum up, the social gathering at Central Park on Usher Syndrome Awareness Day in one word: empowerment. Bringing the community together is key, whether you’re a family member or friend of someone with USH or have Usher syndrome yourself. It’s the feeling of being connected and not having to face this journey alone. Watching everyone come together to socialize and participate in activities was truly heartwarming. There were smiling faces all around, and I can’t wait to reconnect with the community again next year!

Eleanor, Michele, Carolyn, and Mikaela pose for the camera

USH  Awareness Day gathering in Central Park
HKNC Mid-Atlantic Region Launches its New Caregivers Program

HKNC has been fortunate to receive a grant from VISIONS (opens in a new tab) to be able to support caregivers in the five boroughs of NYC (Manhattan, Staten Island, Queens, Bronx, and Brooklyn).

To qualify, you must be an unpaid caregiver that is:
1.  Caring for a DeafBlind adult over the age of 60.
2.  A DeafBlind adult caring for an older adult (i.e. Parent).
3.  Caregivers over the age of 55 caring for a DeafBlind adult age 18-59.
Services offered:

• Counseling, Support Group and Workshops: One-on-one counseling in setting boundaries, improving communication and coping skills. Support groups and workshops to share experiences and gain resources.

• Information & Assistance: Provide resources on available services; assistance with accessing and applying for benefits and making referrals to other available service providers such as case management agencies.

• Respite Services: Offer temporary relief for caregivers where recipients can have short-term in-home health aids to assist with dressing, meal preparation, shopping, escorting, etc.

If you are interested in learning more about this program, please contact us at caregivers@helenkeller.org (opens in a new tab).

An informational zoom session will be announced soon.

Group  of individuals with varying degrees of vision and hearing loss are socializing  at a table at HKNC

VISIONS & SAGE Caregivers Program Honors National Family Caregivers Month with a Caregiver Celebration & Empowerment Event

Celebrating the dedication, strength, and care of family caregivers.
When: Friday, November 6, 2026
10:00 am – 11:00 am     Breakfast & brunch
11:00 am – 12:00 pm     Self-defense workshop for caregivers

1:00 pm – 2:00 pm         Crafts corner to create a keepsake to honor yourself as a caregiver

Location: VISIONS at Selis Manor, 135 West 23rd Street, New York, NY

RSVP: Call Rachelle at 212-625-1616 ext. 129 or RJean-Baptiste@visionsvcb.org. (opens in a new tab)

Space is limited to 30 only for Self Defense and 15 for Crafts. Please indicate if you want to participate in both or just one event.

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Welcome to the November Edition of the East Central Region 3 Roundup

Cynthia Ingraham EdD
East Central Representative
(m) 516-319-6390
cingraham@helenkeller.org (opens in a new tab)

This month’s newsletter highlights the momentum, connection, and community leadership happening across our DeafBlind networks.

From Misunderstood to Independent: Terri Ryan’s Journey 

Growing up DeafBlind, Terri Ryan faced many challenges and low expectations from others. Through determination, family advocacy, access to technology, and the right support systems, she forged her own path to independence. Her inspiring story highlights what is possible when individuals are empowered to reach their full potential. Read more about Terri’s Inspiring Journey.  Read more about Terri’s Inspiring Journey. (opens in a new tab)

Introducing: Accessible Living

Welcome to Accessible Living, a space created by and for our community to share real-life solutions that make everyday living more accessible. Read more on Accessible Living… (opens in a new tab)

Each issue, we’ll highlight practical tips, adaptive tools, and creative ideas that come from lived experience, because often the best solutions are the ones we discover ourselves and pass along to each other. Whether it’s a simple household hack, a helpful app, or a trusted gadget, this corner is all about what works in real life.

Our goal is to support independence, spark new ideas, and strengthen connection by learning from one another. If you have a tip, tool, or strategy that has made a difference in your daily life, we invite you to share, it may inspire someone else on their journey.

Together, we are building access in action, one idea at a time.
Share Your Tips with Accessible Living!

Do you have a favorite hack, tool, app, or everyday solution that helps make life a little easier?

The HKNC Region East Central community is filled with creativity, resilience, and real-world experience, and we want to hear from you! Accessible Living is a space to share practical ideas that support independence and accessible living, and your voice is an important part of it.

Whether it’s a simple kitchen tip, a tech gadget you rely on, a communication strategy, or a creative workaround you’ve discovered, your insight could make a difference for someone else.

We invite individuals who are DeafBlind, as well as family members, professionals, and community partners across HKNC Region East Central, to contribute. Together, we can build a collection of shared knowledge that reflects the strength and innovation of our community.

Have something to share? Send your tips, tools, or ideas to be featured in an upcoming issue!

Let’s continue learning from one another, and turning everyday challenges into opportunities for connection, access, and independence. Share your ideas at: cingraham@helenkeller.org (opens in a new tab).

Upcoming Events

Hebrew Association of the Deaf (HAD) Friendsgiving

Please join us for appetizers, dessert, and games!
Date: Sunday, November 15, 2026
Time: 12:00 pm
Cost: $35 per person
Location: Rose Olanoff Community Center
8027 Castor Avenue, Philadelphia, PA
Registration Deadline: November 8, 2026
Payment: Venmo Gay Balsam (opens in a new tab), or mail check or money order.
Payable to HAD
Heather Goldstein
c/o HAD 260 Charles St. Southampton, PA 18966
Contact: Gay Balsam 215-259-5947 (VP)
Ronnie Adler 484-432-7369 (Text)

DeafBlind Holiday Party

Date: Saturday, December 5, 2026
Time: 11:00 AM – 4:00 PM
Location: Wayne Hills Baptist Church, 877 Ladd Road, Waynesboro, VA 22980
Celebrate the holiday season at the DeafBlind Holiday Party hosted by the Virginia Association for the DeafBlind! Attendees will have the opportunity to meet DeafBlind Santa Claus, socialize with friends, and enjoy a festive afternoon.
Please bring a dish or dessert to share.
Participants who wish to join the White Elephant gift exchange should bring a gift valued at $20 or less.
Admission is free.
For more information, contact the Virginia Association for the DeafBlind (opens in a new tab).

2026 National Federation of the Blind of Pennsylvania State Convention

Dates: November 5-8, 2026
Location: Hershey, Pennsylvania
Registration: Now open.

Website: National Federation of the Blind of Pennsylvania State Convention (opens in a new tab)

2026 National Federation of the Blind of Delaware 58th Annual State Convention

Dates: November 6-7, 2026
Location: Hampton Inn, 117 Sandhill Drive, Middletown, DE 19709

Registration: $30 per person for attendees and includes lunch. Speaker registration is free. Vendor registration is $50, plus $10 for each additional representative.

Check-in: 8:00 AM
Convention Begins: 8:30 AM
Website: National Federation of the Blind of Delaware State Convention (opens in a new tab)

2027 National Federation of the Blind of Maryland State Convention

Dates: February 11-14, 2027
Location: DoubleTree by Hilton Hotel Baltimore North-Pikesville
1726 Reisterstown Road, Pikesville, MD 21208

Registration: $25 per adult through December 31, 2026. Registration is $35 per adult after December 31, 2026. Children age 12 and under register free.

Website: 2027 NFB of Maryland State Convention (opens in a new tab)
-Office of Developmental Programs (ODP) events:

Learn About PA ABLE with the Department of Human Services (DHS)

Date: November 5, 2026
Time: 10:00 AM – 11:00 AM

Description: Learn about the PA ABLE Savings Program, including eligibility requirements, tax benefits, and how PA ABLE accounts interact with important public benefits.

Audience: All Interested Stakeholders

Accommodations: Contact info@paable.gov (opens in a new tab) if you require accommodations to participate.

Registration: Register for PA ABLE. (opens in a new tab)

Move Your Way ® for Mental Health

Date: November 20, 2026
Time: 1:00 PM – 2:00 PM

Description: Learn how physical activity can help reduce stress, improve mood, enhance sleep quality, increase resilience, and support overall mental wellness. This webinar also provides an overview of ODP’s Move Your Way campaign and the Physical Activity Guidelines for Americans.

Audience: All Interested Stakeholders
Registration: Register for Move Your Way. (opens in a new tab)
-CCPS Department of Special Education Saturday Family Events

Registration: Families may register using the following link: [Registration Form] (opens in a new tab). The registration link will only be active during each registration window and will direct families to the registration form for the upcoming event.

Rooted in Possibility: Family Resource Expo

Date: December 5, 2026
Time: 9:00 AM – 2:00 PM
Location: Lackey High School
Highlights:
-Educational sessions for families
-Community provider fair
Registration Window: November 2-22, 2026

Cultivating Success: Family Learning Conference

Date: February 27, 2027
Time: 9:00 AM – 1:00 PM
Location: North Point High School
Highlights:
-Educational sessions for families
Registration Window: January 25-February 19, 2027

Branching Out: Family Resource Expo

Date: April 17, 2027
Time: 9:00 AM – 2:00 PM
Location: North Point High School
Highlights:
-Educational sessions for families
-Community provider fair
Registration Window: March 8-April 9, 2027
Resources

Deaf Education Connections

A free online community from the Laurent Clerc National Deaf Education Center, offering research-based resources, instructional videos, professional development opportunities, and live events for families and professionals supporting deaf and hard of hearing children.

Website: Deaf Education Connections (opens in a new tab)

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Welcome to the Southeast Region 4A section of the newsletter! We are excited to share upcoming highlights for the DeafBlind Community!

Southeast A – Helen Keller Services (opens in a new tab)

Georgia

GA Association of the DeafBlind (GADB) Christmas Event 2026
Saturday, December 12, 2026, 10:00 AM to 4:00 PM
Location: Crusselle-Freeman Church 1304 Allene Ave SW, Atlanta, GA 30310
Flyer and more details are coming soon!
Contact Leigh Russell leighxiongrussell@gmail.com (opens in a new tab) for more information.

Florida

Florida DeafBlind Association (FDBA) PT Vibes at Starbucks
PT Vibes hosts the first Saturday of every month at Starbucks.
Date: December 5, 2026
Time: 1:00 PM to 3:00 PM
Location: Starbucks 2280 N. Courtenay Parkway, Merritt Island, FL 32953

Florida DeafBlind Association (FDBA) State Conference 2027 and Election Day!

We’re excited to announce that the FL DeafBlind Association (FDBA) State Conference 2027 will be held at Drury Hotel Plaza Tampa Brandon in Tampa, Florida this February!

Save the date: February 18-21, 2027

Location: Drury Plaza Hotel Tampa Brandon, 802 S. Falkenburg Road, Tampa, FL 33619

Reservation can be made online at Drury Hotels Booking (opens in a new tab) then enter group number of 10191543, or by calling 1-800-325-0720.

Reservation Deadline: January 16, 2027

Election Day will take place on Saturday, February 20, 2027, during the State Conference!

It’s sure to be an arrrgh-smashing success with a fun Gasparilla vibe in PT style.

Learn more at FDBA News (opens in a new tab).

Florida Spotlight: Making the Best Dog in the World: Theresa’s Way

Cover of Theresa A. Wells’ book.

Theresa A. Wells is now a published author, sharing her story with readers around the world! Making the Best Dog in the World: Theresa’s Way (opens in a new tab). The book celebrates Theresa’s journey with Ace, her third guide dog.

Through patience, trust, and dedication, their partnership grew into something extraordinary. The book shares how Ace became the phenomenal dog he is today and the bond they built along the way.

Their adventures continue! Ace and Theresa are preparing for their eighteenth and nineteenth road trips to St. Augustine, the oldest city in the United States.  

Discover their book and follow their travels through the links below.
Book link: Ace the Phenomenal Red BOOK (opens in a new tab)

Blog link:  Ace the Phenomenal Red BLOG (opens in a new tab)

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Welcome to our Southeast Region 4B section of the newsletter! Here are just a few highlights from our region serving Kentucky, North Carolina, South Carolina, Tennessee, and Puerto Rico.

Southeast B – Helen Keller Services (opens in a new tab) 

South Carolina Spotlight

Art and DeafBlindness
by Carol Saylor, Accomplished Artist and Sculptor

During my forties, I began to see flashes of colors and shapes. Often the head of a beautiful blue cougar with flashing orange eyes appeared in my central vision. Then I found it difficult to concentrate on a conversation, because I longed to close my eyes and watch the exciting progression of the kaleidoscope of shapes and colors.

As these amazing visions evolved, I kept it a secret, because I was babysitting grandchildren, and I did not want anyone to think I was Nutz.

With only tunnel vision remaining, I often closed my eyes to “see,” then opened them to sketch the images and note their colors. These sketches developed into watercolors and, eventually, three-foot oil paintings on canvas. “But e fwies, but e fwies,” exclaimed my toddler grandson after following me from the basement family room into my studio. I was delighted. I picked him up and twirled him around. He recognized the painting, a giant, three-foot “but e fwy”!

I asked my doctor about the colors I saw. “If I told you what they were,” he said with a smile, “I would just be making it up.” I thought, “Why did he say that?” and “What was that all about?”

Eventually, I met Cynthia Ingraham, my HKNC Representative, and, after I got to know her, I shared the story about my strange color visions. Cynthia started searching the internet. the Charles Bonnet Syndrome (CBS) was only recently translated into English, and the internet was new, but she tracked articles down about people, who saw colors, and she sent them to me. Eventually, I diagnosed myself with Charles Bonnet Syndrome (CBS).

“Of course, I am blind, and I forgot.” Many people believe I must be helpless, and so they may grab me, and sometimes they grab me by my white cane, which can render me helpless. They sometimes call me amazing, it is because I dressed myself this morning, or maybe they saw me tie my own shoe? You do not even know me, but you think you know just what blindness is, and before I open my mouth, you may have already decided what I need or what I can do.

Recently, another strange feeling has crept into my subconscious. Why did they use that tone of voice, and what was that all about? In addition to deafness and blindness, it is “oldness” or paranoia. When I walk into a room and everyone stops talking. Are they watching me clutch around? No, I must be paranoid, or maybe it is dementia.

I never thought I would live this long, and now I think I will live much longer.

Circumstances forced me to move to South Carolina with my son and his wife. They have graciously accommodated me with a space for a small studio. I have learned so much more in my old age. In just six months I will celebrate my ninetieth birthday, and I now see lovely soft colors and vibrating textures, and I see them 24/7 and I hope I always will!

My approach to making art has changed. I work more slowly and try to be patient with myself. I still rely on touch to use my tools and have organized my workspace differently and now create smaller pieces to fit the space. I wish I could share what old age has taught me about art and blindness. It can be simpler, more abstract, and free of fear about what is ugly and what is beautiful…and, maybe, that is what is truth and what is not.

Learn more about Carol Saylor, visit Carol’s webpage Carol Saylor, (opens in a new tab) and Carol’s wonderful video segments about her artwork at Carol Saylor Art Videos (opens in a new tab).

Tennessee Spotlight

Photo of Anthony Rose wearing his Meta-Glasses.
I Saw That! I Can’t Believe My Ears!  
by Anthony Rose

A pair of glasses that reads my mail, identifies objects, and helps me hear in a noisy restaurant, I’ve been using Meta’s smart glasses (currently the Ray-Ban Meta Gen 2), and while they weren’t built as accessibility devices, they’re one of my most useful tools. I tried the Gen 1 too, but short battery life and a low-resolution camera made them more novelty than a tool.

To learn more about Ray-Ban Meta Glasses Gen 2, visit Ray-Ban Meta Gen 2 (opens in a new tab)
Overview and shopping visit, Meta Glasses (opens in a new tab)

One honest note, because it matters here: everything these glasses do comes back to you as sound. Someone who is totally deaf will not get the benefit, and if you need a braille display to read what is on screen, it is no longer hands-free. They shine brightest for those of us with usable hearing: hearing aids, cochlear implants (mine are Advanced Bionics), or residual hearing.

The camera, paired with Meta’s Live Ai, identifies objects and reads text aloud, I point my face at the thing and ask. My apartment thermostat has a display that does not talk, so the glasses read it for me. Same with my air fryer. And postal mail: I hold up an envelope to be read to me. It is like a patient sighted friend who never tires of “What does this say?”

Third-party apps take it further. OOrion (opens in a new tab) finds objects, ask where your keys are, and it guides you there with audio cues, and describes surroundings as you walk. Learn more at OOrion (opens in a new tab)

ScribeMe’s Live Assist (opens in a new tab) narrates what is in front of you continuously. When one hand is already holding a cane, keeping the other free is no small thing. Learn more at  Scribeme-ai (opens in a new tab).

Conversation Focus is the glasses’ hearing feature: it isolates the voice of the person directly in front of you, within about six feet, and turns down the background noise, a zoom lens for your ears. Honestly, in my brief tries the sound came through watery and unhelpful, though that may be how it interacts with my cochlear processors. Meta briefly tried to cap it at three free hours a month
behind a $20 subscription, then paused the plan after pushback.

New from Meta: The Gen 3 ($449, longer battery, better mics) and a camera-free Audio model ($349). There is also a display model, but that is a whole other topic, visit the Ray-Ban webpage Ray-Ban Meta Discover Gen 3 (opens in a new tab).  

No cure, and no replacement for trusted tools. But for a blind person with usable hearing, glasses that read your thermostat, sort your mail, and pick a voice out of a noisy room to earn their place on your face.

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Welcome to the North Central Region 5 Roundup!

Leaves are Falling, Autumn is calling! At  Helen Keller National Center (HKNC), our mission is to enable individuals who  are DeafBlind to live, work, and thrive in their communities, and over the past  few months, the North Central Region has been actively advancing that mission  through partnership, training, and innovation.

Fun Days of Summer Ending

RSC Kacie Weldy and DBES, Joann Rushing, were monkeying around with hands on activities at the Toledo Zoo Access for All Day. Families and children participated in simulation activities and learned about DeafBlindness and the impact on people with combined vision and hearing loss.

Relay Indiana DeafBlind Technology Workshop 2026

HKNC was proud to be part of Touch of Technology 2026! 💙

Hosted by Relay Indiana, Touch of Technology brought together more than 150 attendees to explore accessibility, innovation, resources, and technology for the DeafBlind community.

HKNC’s Laurie McBride and Genevieve Barnes presented: “Touch and Go: Alerts, Alarms, and Emergency Preparedness”. From waking up and receiving environmental notifications to preparing for fire, flood, or evacuation, Laurie and Genevieve shared haptic techniques and specialized apps that can help DeafBlind individuals stay informed, connected, and prepared.

Thank you to Relay Indiana, the exhibitors, presenters, attendees, and everyone behind the scenes who helped make the day possible. We were thrilled about a successful event and look forward to more opportunities to connect!

The image shows the Cadence Tablet by Touchable (Tactile Engineering), a dynamic tactile and multi-line braille device that renders digital content, text, and real-time graphics.

Samantha Johnson, the founder and CEO of Tatum Robotics (opens in a new tab), a Boston-based startup that builds assistive robotic systems for the DeafBlind community, demonstrates her product.

Support Service Provider (SSP)/Co-Navigator (CN) Program Returns to Ohio!

Vancro (opens in a new tab) was awarded the contract for Ohio Support Service Provider/Co-Navigator (SSP/CN) services. The program is now open and accepting applications!

Vancro ASL & Captioned/VoiceOver Announcement (opens in a new tab)

The Vancro team will meet with key stakeholders, plan a community meet-and-greet, and prepare an SSP/CN training. Vancro is now accepting applications for both SSP/Co-Navigators and DeafBlind program participants.

The program is available to Ohioans who have both hearing and vision loss. Participants may use ASL or spoken English and may have limited vision or be completely blind. Services are individualized based on each person’s communication preferences, access needs, and goals.

If you are unfamiliar with SSP/CN services or think you or someone you know may qualify for the program, this short video link provides a helpful introduction. It is in ASL with captions and VoiceOver:

Introduction to SSP/CN Services (opens in a new tab)

To apply to receive SSP/CN services or to become an SSP/CN, apply using the links below. Once Vancro receives your application they will reach out to onboard program participants and previously trained SSPs to start services right away. You may contact Vancro to sign up by email, text, voice, or videophone.

For new SSPs: A training date will be announced very soon. Please apply now, to help Vancro select a training location that meets the size of the group.

The Vancro Team is happy to answer any questions and assist with the application process. Just call or send a message! The Ohio SSP/CN team is available to help!!

Form for DeafBlind to apply for SSP/CN services (opens in a new tab)
Form to apply to become an SSP/CN (opens in a new tab)

Vancro is truly excited to begin this work in Ohio and looks forward to building a strong, responsive SSP/CN program in partnership with the DeafBlind community.

Contact information:
Mark Lucero-Muniz
Lead SSP/CN and Communication Facilitator Program Manager
Email: Mark.LuceroMuniz@vancro.com (opens in a new tab)
VP: 505-445-6306
Text: 505-584-8195

Kacie Weldy | North Central Regional Services Coordinator
Helen Keller National Center
Phone: 516-269-1233 (Voice/Text)
kweldy@helenkeller.org (opens in a new tab)

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Welcome to the South Central Region 6 Roundup!

Introducing Your New Regional Representative

Headshot of Jenna Rydl, she is smiling with shoulder-length brown hair and black glasses.

Hello “South Central”! My name is Jenna Rydl, and I am your new Regional Representative. I am transitioning from New Hampshire, where I have worked for the past two and a half years as an itinerant Orientation and Mobility instructor for HKNC’s New England region. Before working for HKNC, I lived and worked in Texas for several years as an ASL interpreter in post-secondary education and video relay service settings.

I earned a Bachelor of Science degree in Rehabilitative Services with a focus on Orientation and Mobility from Stephen F. Austin State University in East Texas and am a Certified Orientation and Mobility Specialist (COMS), as well as a Texas Board for Evaluation of Interpreters (BEI) Advanced-level certified interpreter.

My diverse background includes work with the Deaf and Hard of Hearing (DHH) community, children and adults with multiple disabilities, as an Orientation and Mobility instructor, as well as international experience as an au pair in Switzerland. I am now eager to make connections and find creative solutions in the states in the South Central Region!

A fun fact about me: my sign name is the sign for “jokes”, given to me around 9 years ago due to my tendency to joke around and laugh with my Deaf friends.

Looking forward to getting acquainted virtually and in person soon.
Jenna
Don’t hesitate to reach out!
jrydl@helenkeller.org (opens in a new tab)
Voice/Text: (516) 512-0178
VP: (802) 321-8596

Introducing Our New Administrative Assistant | HKNC Regions 1 & 6

Headshot of Tasha Cruz, she is smiling with short, curly red hair and black jeweled cat-eye glasses. She is wearing a navy-blue blouse with a large bow tied at her throat.

Hello, everyone!

My name is Tasha Cruz, and I’m excited to introduce myself as the new Administrative Assistant supporting Regions 1 (New England) and 6 (South Central) at Helen Keller National Center!

I bring a diverse background in executive administration, project coordination, and organizational support, with experience working alongside nonprofit organizations, community leaders, and business professionals. Throughout my career, I’ve developed a passion for creating efficient processes, strengthening communication, and helping organizations operate more effectively.

As I begin this new chapter with HKNC, I’m looking forward to learning more about the DeafBlind community, building meaningful relationships with individuals, families, colleagues, and community stakeholders across both regions, and supporting the important work being done.

On a personal note, I am originally from the South Bronx in New York. I now live in Hartford, Connecticut with my two cats, Johnny Manolo and Mikey Sinatra, who keep things entertaining. Outside of work, I enjoy cooking, baking, painting, attending plays and Broadway shows, and exploring local farmer’s markets.

I’m excited to learn, contribute, and grow alongside the HKNC team!
Tasha
tcruz@helenkeller.org (opens in a new tab)
Voice/text: (516) 460-6702

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Welcome to the Great Plains Region, serving Iowa, Kansas, Missouri and Nebraska.  You can connect by calling 913-677-4562 voice or 913-227-4282 videophone or email Beth at bjordan@helenkeller.org (opens in a new tab).

Conference Attendance was Well-Received

In September, I attended the Kansas Governor’s Conference on Aging in Lawrence, Kansas.  This annual event marked my first opportunity to attend and I was asked to present.  I co-presented with Laura White, a Kansas DeafBlind artist whom I have introduced you to in the past.  Our breakout session “The Golden Years Look Different with Age-Related Vision and Hearing Loss” was very well received. We shared findings from the national HKNC survey, Recognizing the Needs of Older Adults with Combined Vision and Hearing Loss 2024 (opens in a new tab) and explored adaptive strategies for supporting older DeafBlind adults in areas such as independent living, smart-home technology, vision and communication apps, emergency preparedness, transportation and socialization/recreation.  We also provided Kansas-specific agency resources.  Email/call me if you would like a copy of the presentation materials for this event.

Conference Finds You’ll Want to Know

One of the best things about attending conferences is discovering new resources and innovative programs to share with others.  At this conference, I was introduced to several outstanding services that are available at no cost, not just to Kansans or older adults but to people of all ages across the country.

Did you know that Alzheimer’s disease begins impacting the brain twenty years before memory loss appears?!  That research nearly knocked me off my feet.  As a result, what we eat, drink, how we sleep, stay active and our social life impacts our future self.  Think about that, what we eat and do when we are 20, 30, 40 years old, impacts the presence and the delay of memory loss.  That is mind-boggling, but it does make sense.  Over time, taking care of our body does have lasting positive effects.  

There are six factors that can reduce our risk for Alzheimer’s disease by 30-60%.  These factors include:

• Move more – more steps each day, and light activity like going for a walk;

• Get fit – light strength training, stretching, and aerobic exercise;

• Eat healthy – less processed foods, more whole grains, healthy fats (like olive oil), drink sufficient water each day and eat more vegetables;

• Sleep well – 7 to 9 hours of restful sleep a night;

• Stay connected – practicing new skills, hobbies, connect regularly with friends/family; and

• Manage stress – find joy daily, express gratitude, prioritize your emotional health, and seek support if needed.  

This information was provided by the Kansas University Alzheimer’s Disease Research Center (opens in a new tab).  While most of us have heard these guidelines throughout our lifetime, the organization now has some ways to help us achieve these healthy life goals.  

LEAP! Program: Empower Your Brain

Lifestyle Empowerment for Alzheimer’s Prevention (LEAP!) offers several free tools to help all of us.  

1) Brain Health Boot Camp – six weekly one-hour, online sessions that discuss these six healthy habits.  Sessions are interactive via Zoom.  

2) Mediterranean Diet Course – four weekly one-hour, online sessions that deep dives into brain-health nutrition.  Led by a dietician via Zoom, these sessions include healthy eating tipsheets and recipe challenges.

Image description: White plate divided into three sections to represent foods in the Mediterranean Diet with half the plate as vegetables in green, one quarter of the plate being grains in red, and one quarter of the plate being protein in purple.

3) Brain-Healthy Lifestyle Score – this short online quiz will help us understand how we are doing with the six everyday habits and areas we can work on. Brain Health Quiz (opens in a new tab)  

Again, these resources are available to anyone, any age, from any state – FREE.  Captioning and interpreter support are provided if needed. To learn more and sign up, use this link: LEAP! Program for Better Brain Health (opens in a new tab). You can also email any questions to kuadrcleap@kumc.edu (opens in a new tab).

What do we have to lose? Maybe I should word it, think about what we have to gain!

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Welcome to the Rocky Mountain Region 8 Roundup!

Have an upcoming DeafBlind event to share? Send details to your HKNC Rocky Mountain representative, Jonathan Pringle, at Jpringle@helenkeller.org (opens in a new tab) or call 516-417-1165.

Connecting the Dakotas Region to Opportunities for DeafBlind Youth

Jonathan Pringle attended the Dakotas AER Annual Conference, held October 13–15, 2026, at the South Dakota School for the Blind and Visually Impaired in Aberdeen. He shared information about HKNC’s Summer Youth Program and other programs with professionals serving the region.

The conference provided an opportunity to raise awareness of resources available to DeafBlind youth and their families and to connect with professionals who can help share those opportunities in their communities. Jonathan was excited to discuss the Summer Youth Discovery options and looks forward to building on those connections in the year ahead.

Photo Caption: HKNC’s informational booth at the Dakotas AER Annual Conference in Aberdeen, South Dakota.

Events Across the Rocky Mountains

Arizona

November 7 | Walk4Hearing Arizona, Community walks at Rio Salado Park in Mesa; a broader hearing-loss community event. Walk4HearingAZ (opens in a new tab)

November 20 | VRATE 2026: Vision Without Limits, Assistive technology expo at Ability360 in Phoenix, 8 a.m.–4 p.m.; registration required. VRATE (opens in a new tab)

Utah

November 6–7 | Sanderson Center Holiday Bazaar is a public event, Robert G. Sanderson Community Center of the Deaf and Hard of Hearing, Taylorsville. Friday 5–8 p.m.; Saturday 9 a.m.–4 p.m. Public event  

November 26th- Thanksgiving Luncheon

The annual 2026 Thanksgiving Luncheon at the Sanderson Community Center of the Deaf and Hard of Hearing (opens in a new tab) will take place on Thursday, November 26, 2026, from 11:00 AM to 1:00 PM

Registration is required by Tuesday, November 17, so we can prepare enough food for everyone.

RSVP at the following link:   (opens in a new tab)Gathering (opens in a new tab)

Colorado

November 4, December 2 & January 27  Sound Bites Webinars,  Online professional-development sessions, 4–5:30 p.m. Mountain Time, covering accessible learning and assistive technology. Event information (opens in a new tab)

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Hello, I’m Chad Metcalf, HKNC Regional Services Coordinator for American Samoa, California, Commonwealth of Northern Mariana Islands, Guam, Hawaii, and  Nevada.  You can connect by calling 951-208-6548 videophone or email me at cmetcalf@helenkeller.org (opens in a new tab). I’m excited to share updates on HKNC’s services in the Southwest region. 

Brenda Elias Begins New Role at Kohl’s

Brenda Elias starting her new position at Kohls, feeling happy and proud.

Brenda Elias, who is DeafBlind due to Usher syndrome, started a new position in July 2026 as an operations associate at Kohl’s in southern California. In this role, she supports day-to-day operations both in the back of the store and on the sales floor.   

With support from the HKNC California Community Services Program (opens in a new tab) (CA CSP) team and the California Department of Rehabilitation (DOR), Brenda is prepared for her new role and identified the accommodations she needed to feel confident and successful at work.   

During her Orientation and Mobility evaluation, Brenda demonstrated strong independent travel and problem-solving skills, using her functional vision systematically to navigate her environment. She also secured reliable transportation to ensure she arrived to work on time.   

Brenda shared: “Getting my new job at Kohl’s has made me feel very happy, proud, and excited about my future. As a DeafBlind person, having the right support and accommodations has helped me become more confident and independent at work. I’m very grateful to HKNC and DOR for believing in me and helping me reach this important goal.”   

The HKNC CA CSP will  continue to support Brenda as needed. We are proud to celebrate Brenda and this  exciting milestone in her employment journey!

iCanConnect

iCanConnect is a federally funded program that provides free distance communication equipment and training to individuals with combined hearing and vision loss. The program offers technology including smartphones, tablets, computers, screen readers, and braille displays along with training to help participants with distance communication – communicating  with other people not in the same room . It is available to low-income individuals who meet federal disability and income guidelines.  Communication Service for the Deaf (CSD) provides iCanConnect services for California and can be reached at iCanConnectCA@csd.org (opens in a new tab).

Chad Metcalf is the iCanConnect point of contact for American Samoa, Commonwealth of the Northern Mariana Islands, Guam, and Nevada, and can be reached at cmetcalf@helenkeller.org (opens in a new tab).

For more information, visit the iCanConnect (opens in a new tab) page.

Upcoming Regional Events

California: The 5th Annual Deaf & Ally Day Celebration (opens in a new tab) at Universal Studios Hollywood takes place on November 7, 2026.

Nevada: The 2026 Engagement Conference (opens in a new tab) hosted by the Nevada Commission for Persons who are Deaf and Hard of Hearing or Speech Impaired takes place November 13–14, 2026, at the College of Southern Nevada in Las Vegas.

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Welcome to the Northwest Region 10 Roundup!

HKNC Spotlight | Helen’s 5K Walk/Run

Photo Caption: An HKNC participant and Kirsten Hille cross the finish line together.

On September 20, 2026, regional representatives joined Helen’s 5K Run/Walk in Sands Point, New York. We are excited to recognize everyone who participated and volunteered.

As the Northwest Regional Representative, I had the opportunity to volunteer at the event. It was a meaningful experience that reminded me of the importance of showing up for community events. These opportunities help us connect, build relationships, and celebrate the DeafBlind community.

HKNC Partnership and Community Visits in Washington

Photo Caption: From left: Kirsten Hille, Ashley Benton and Jennifer Falls.

From October 15-18, Ashley Benton, Director of Field Services, and Kirsten Hille, Regional Representative for the Northwest Region, had the opportunity to visit Seattle, Washington. We followed a full schedule that gave us a meaningful look at community-based training, employment, communication access, and the strength of the DeafBlind community in the Seattle area.

We began at the Washington State Department of Services for the Blind Orientation and Training Center (OTC), where Alice Klein served as our tour guide. Alice is the OTC Lead, a certified Orientation and Mobility specialist, and the Center’s yoga instructor. She provided an in-depth tour and introduced us to counselors, administrators, instructors, and participants throughout the program.

One of the most notable features for us was the OTC’s intensive residential and commuter training model. Eligible participants who live too far away to commute may stay in nearby apartments while completing blindness-skills training. Rent and basic utilities are covered, and participants receive a weekly amount for food and personal expenses. The apartments are fully equipped, and participants take responsibility for preparing meals and managing daily routines. We saw an excellent example of community-based training that allows people to practice skills in a real-life setting while building confidence for employment and independent living.

Alice has been a strong partner to HKNC and is eager to collaborate on DeafBlind initiatives, including local training opportunities and support for individuals who may benefit from HKNC services. We left encouraged by the possibilities for continued partnership.

For more information: Washington State Department of Services for the Blind (opens in a new tab)

That afternoon, we presented a virtual workshop, “Introduction to the DeafBlind World,” for six vocational evaluators in Alaska. The workshop was well received, and future training on Haptics communication is already being discussed. We extend special thanks to Devon Rust, Vocational

Evaluation Coordinator with Alaska Vocational Rehabilitation Services, for coordinating this valuable opportunity.

For more information: Labor Alaska (opens in a new tab)

On Friday, October 16, we visited The Lighthouse for the Blind, Inc., where Morgan Breese, DeafBlind Program Coordinator, welcomed us and facilitated our tour and introductions with staff and employees. In the lobby, a tactile timeline highlighted the Lighthouse’s history, including the first National DeafBlind Retreat in 1978. We had recently learned that the long-running retreat had been discontinued. It was heartening to hear from Morgan that members of the Washington DeafBlind community are working to identify funding and support for a future DeafBlind retreat.

Our time with Lighthouse employees was especially memorable. Employees spoke with pride about their work in precision machining, assembly, and injection molding for aerospace and other customers, including The Boeing Company. The Lighthouse has supported Boeing manufacturing since 1952 and employs blind and DeafBlind machinists. Seeing the skill, professionalism, and pride behind this work was truly eye-opening.

For more information:  The Lighthouse for the Blind, Inc. (opens in a new tab)

Later that day, we visited the DeafBlind Service Center (DBSC) and met with Executive Director Angela Theriault. DBSC serves DeafBlind residents across Washington State and provides services that include Support Service Provider/CoNavigator (SSP/CN), Communication Facilitator, advocacy, interpreting, and professional services. We appreciated the opportunity to learn more about DBSC’s work and discuss how our organizations can strengthen access and support for the community.

For more information: Seattle DeafBlind Service Center (opens in a new tab)

On Saturday, October 17, we represented HKNC at the DeafNation Expo. It was a wonderful opportunity to meet DeafBlind community members, families, and service providers. We were especially heartened to connect with several former HKNC participants who are still using the skills they gained through HKNC as they live and work in the area.

For more information:  2026 DeafNation Expo Seattle (opens in a new tab)

Seattle has a large and diverse DeafBlind community, and the Expo gave many people the opportunity to meet Kirsten, their Regional Representative, and learn more about HKNC. We returned with several pages of new contacts to follow up with, an exciting sign of the interest and connections built throughout the day.

This visit reinforced how much becomes possible through strong partnerships. We are grateful to the Washington State Department of Services for the Blind, The Lighthouse for the Blind, Inc., the DeafBlind Service Center, Alaska Vocational Rehabilitation Services, DeafNation Expo, and the many community members who welcomed us. With these relationships growing stronger, we look forward to expanding collaboration and opportunities for DeafBlind people throughout the Northwest Region.

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