HKNC Connection

New England Region Round-Up: Partnerships, Training, and Community Connection

Over the past few months, the New England Region has been busy supporting HKNC’s mission to ensure individuals who are DeafBlind have access to the services, supports, and opportunities they need to live, work, and participate fully in their communities.

One exciting highlight has been our developing partnership with the New England Home for the Deaf (NEHD). This collaboration is focused on increasing communication access, strengthening staff knowledge, and creating more meaningful opportunities for DeafBlind residents to participate in their daily life through customized online modules. Additionally, Jenee Alleman, HKNC’s DeafBlind Older Adult Specialist, will be coming to NEHD to provide a hands-on, interactive two-day training. We are looking forward to moving into the next phase of this work, which will be preparing for the upcoming training.

This project is also a great example of how HKNC works to build support that lasts beyond one training. The model includes both in-person learning and ongoing virtual support so that staff have opportunities to continue asking questions, practicing skills, and applying what they learn in real situations.

Partnerships continues to be at the center of our work across New England. Through our ongoing relationships with state agencies, community organizations, and national HKNC staff, we continue to strengthen coordination and improve access to services throughout the region.

We also continue to provide training and technical assistance, including an ongoing Community of Practice for New England Vocational Rehabilitation Counselors. This work has focused on accessible work readiness strategies, advocacy, and individualized, person-centered approaches that support DeafBlind individuals in reaching their employment goals.

Building Community Through Connection and Celebration

In addition to our systems-level work, HKNC has been actively involved in community events across the region. HKNC proudly sponsored the Northeastern University and DBCAN Protactile Workshop during the week of June 24th, supporting opportunities for learning, connection, and the continued growth of accessible communication practices.

That same week, HKNC team members also joined community partners for the DeafBlind Community Access Network (DBCAN) 25th Anniversary Cookout on June 26th and the NEHD Helen Keller Birthday Party on June 25th. These gatherings were a wonderful reminder of the importance of connection, culture, and shared celebration within the DeafBlind community.

Looking Ahead: DeafBlind Awareness in Action

HKNC is proud to be an active member of the DeafBlind Awareness planning committee in Massachusetts. We are working alongside DeafBlind leaders and partner organizations, including the New England Consortium (NEC), Carroll Center for the Blind, Massachusetts Commission for the Blind (MCB), and DeafBlind Community Access Network (DBCAN). This collaborative planning effort is an important opportunity to elevate DeafBlind voices and increase awareness across the state.

We are excited that the annual DeafBlind Awareness event will be held on October 8th at the Massachusetts State House. This event brings together community members, advocates, and partners to raise awareness, celebrate accomplishments, and highlight the experiences and contributions of individuals who are DeafBlind.

Looking ahead, the New England Region is preparing for new training opportunities this fall and continued growth in our partnerships across the region. Each of these efforts reflects HKNC’s ongoing commitment to access, collaboration, and meaningful support for DeafBlind individuals and their communities.

Together, we are strengthening partnerships, expanding access, and building meaningful opportunities one connection at a time.

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Welcome to the Mid-Atlantic Region 2 Roundup!

Eleanor Coley-Brody, Regional Representative for NY and NJ
Contact: 516-570-3634 (VP) or email: ecoley-brody@helenkeller.org

Updates from HKNC in Region 2:

Region 2’s Regional Representative, Eleanor Coley-Brody, took a big trip at the end of May to attend the ADARA (American Deafness and Rehabilitation Association) conference in Salt Lake City, UT.  Eleanor attended along with five other colleagues from HKNC: Lisa Catanzaro, Jonathan Pringle, Jodi Flickinger, Ashley Benton, and Jennifer Falls.  Eleanor and Ashley co-presented on resilience, psychosocial well-being, and practical strategies for support with the title: “Climbing Higher: Fostering Emotional Strength in DeafBlind Lives.”

As a reminder, your regional representative is available to provide trainings on a variety of topics. Read more here for training opportunities

Five people pose behind an HKNC exhibit table stocked with brochures, information, and resources.

On June 27, 2026, The DeafBlind League of NJ (DBLNJ) and DeafBlind Community Access Network of New Jersey (DB-CAN NJ) hosted their DeafBlind Awareness Week Celebration at Joseph Kohen Training Center (JKTC) along with a cornhole tournament.  There were several individuals to welcome the group to the event, including Dr. Bernice Davis the Executive Director of New Jersey Commission for the Blind (NJ-CBVI), Eleanor Coley-Brody Regional Representative for HKNC, Steven McCoy a representative from New Jersey State Rehabilitation Council (SRC), and Jason Ingle from the Office of Senator Andy Kim to present the Governor Sherril’s Proclamation of DeafBlind Awareness Week.

DeafBlind Awareness Week graphic with a New Jersey state map and partner organization logos.

DB CAN NJ Board Trustees Marci, Sherel, Kathy, and Jonathan show off Governor Mikie Sherrill’s Proclamation designating Helen Keller DeafBlind Awareness Week in New Jersey. They are joined by community partners from the DeafBlind League of New Jersey (co-sponsors of the celebration), Spoken Heroes, NJ CBVI, and Jason Ingle, congressional aide to U.S. Senator Andy Kim, who holds a Certificate of Congressional Recognition honoring the advocacy milestone.

In addition, Eleanor traveled across the country again to go to the USH 2026 Connections Conference and worked alongside HKNC colleagues to network, learn, and present hands-on demonstration of tools, techniques, and tips for navigating life with combined vision and hearing loss.

The team networked with families, researchers, and other DeafBlind agencies and organizations during the American Association of DeafBlind Association sponsored Wine and Cheese Meet & Greet on Friday, attended sessions and hosted the HKNC exhibit table on Saturday, and presented on Sunday.

Eleven participants pose for a group picture at a conference, with a small poster board displayed in the middle.

Updates from the Community in Region 2
MOPD’s DeafBlind Townhall

New York City’s Mayor’s Office for People with Disabilities (MOPD) hosted it’s first ever DeafBlind Town Hall on June 23, 2026.  There were approximately 40 people in attendance.  The MOPD’s commissioner Nisha Argwal’s vision is to connect the disability communities with one another, identify problems that the DeafBlind community faces (ie. housing, transportation, education, health, mental health, and employment) and find solutions.  There were some wonderful comments related to a need for CoNavigator/SSP services, needing consistent and accessible crosswalks, government websites not being fully accessible, etc.

To connect with the commissioner, please contact the Chief of Staff at NYC MOPD Elena Pereria:

Phone: (332) 455-3222 voice
Email: elpereira@cityhall.nyc.gov
For more information about Commissioner Nisha Agarwal

Commissioner Nisha Agarwal stands in an official portrait wearing a dark blazer and white turtleneck, with the New York State and New York City flags displayed in the background.

New York State Commission for the Blind (NYSCB) Quarterly Informational Session

NYSCB is launching quarterly informational sessions via zoom.  This session is intended for new participants, caregivers, providers, educators, and community partners to learn more about:

• NYSCB Vocational Rehabilitation Program

• Eligibility and the application process

• Individualized Plans for Employment (IPE)

• Available supports and resources

• District office contacts and next steps

• Questions and answers with NYSCB staff

Session Dates:

• Thursday, October 1, 2026, 2:00 p.m. – 3:00 p.m.

• Thursday, February 4, 2027, 10:00 a.m. – 11:00 a.m.

• Thursday, June 3, 2027, 2:00 p.m. – 3:00 p.m.

Location: Zoom
Registration: No pre-registration required. Please note that the same Zoom link and call-in information will be used for all scheduled sessions.  
Zoom Link: https://ny-gov.zoomgov.com/j/1610150907

For questions about the NYSCB information session, please email NYSCB.publicinput@ocfs.ny.gov.  

Current NYSCB participants should contact their

counselor or local district office.

                          Logo of the New York State Office of Children and Family Services in purple
17TH Big Apple ASL Festival- Save the Date!

Date: Saturday, October 3, 2026
Location:  St. Joseph’s School for the Deaf
1000 Hutchinson River Parkway
Bronx, NY

Visit over 50 booth vendors, entertainment, music and food & drink refreshments

FREE ADMISSION – Open to the Public
Questions: deafevent@aol.com

17th Big Apple ASL Festival flyer with a building, a bright sun, and a blue-and-yellow background.

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Welcome to the August edition of the Region 3 Roundup. This month’s newsletter highlights the momentum, connection, and community leadership happening across our DeafBlind networks.

We begin with a look back at the Pennsylvania DeafBlind Project’s Family Learning Conference, where families, professionals, and partners gathered for hands‑on learning, peer support, and shared problem‑solving. The event brought together children, youth, and adults with combined vision and hearing loss, offering practical strategies, communication tools, and opportunities to strengthen family‑centered planning. The event occurred during the celebration of Helen Keller National Center’s DeafBlind Awareness Week. The group purchased a birthday cake for Helen Keller and joined together for a chorus of Happy Birthday. Read more on Project’s Family Learning Conference…

This issue also features a profile of Jason Jones, a man living with CHARGE Syndrome who’s long‑term success at Giant Food is a testament to persistence, strong community support, and meaningful employment. Jason has worked with Giant since 1999, beginning shortly after completing training at the Helen Keller National Center. His story reflects what is possible when workplaces, residential programs, and DeafBlind individuals collaborate to build stable, fulfilling careers. Read more on Jason Jones…

Looking ahead, Region 3 partners are preparing for several upcoming opportunities, including the DeafBlind Camp and the Consumer Support Group in Virginia—two programs that continue to expand peer connection, independent living skills, and community engagement. Families of young children will also be interested in the Delaware Program for DeafBlind Children’s Family Learning Conference, a gathering designed to support early intervention, family education, and collaborative planning.

This month introduces a new recurring section: Accessible Living. Each installment will share practical tools, low‑cost hacks, and everyday resources that support independence for individuals with combined vision and hearing loss. From household adaptations to affordable devices, this section is designed to make accessibility easier, more approachable, and within reach for everyone. Read more on Accessible Living…

Finally, we highlight an important national resource: free Meta smart glasses for all veterans. This initiative expands access to wearable technology that can support navigation, communication, and daily information access—an especially meaningful opportunity for veterans living with vision or hearing loss.

Together, these stories reflect the strength of our regional community and the ongoing work to expand access, independence, and connection for individuals who are DeafBlind and the families and professionals who support them.

Upcoming presentations and events:

Virginia Rehabilitation Center for the Blind and Vision Impaired (“VRCBVI”) Thrive 55+ Retreat:

Two sessions, one week each; Sunday, August 20 and Sunday, August 27

Presents its senior program, Thrive 55+ Program, which has two sessions. Concurrent sessions will be offered for participants to choose from a variety of activities. The Helen Keller National Center will be present to host a session on the final day of each week from 9:00–11:00 a.m. Participants can meet with Dr. Cynthia L Ingraham, to discuss daily living skills techniques, gadgets and safety solutions for older adults with combined vision and hearing loss.

The sessions will take place that the Virginia Rehabilitation Center for the Blind and Vision Impaired located at:  401 Azalea Avenue, Richmond, VA 23227, phone: (804) 371-3151 Does your vision loss affect your ability to read, get around independently, take care of your home, and enjoy your hobbies? VRCBVI’s Senior Retreat can help by providing the following services free of charge:

• Daily living skills
• Independent travel
• Assistive technology skills such as learning to use iOS devices

• Diabetes education and training on the use of talking glucometers and other tools

• Nutritional consultation
• Recreational activities designed to promote a healthy, active lifestyle
• Additional resources
For more information contact:
Amy C. Phelps, CRC, NOMC
Assistant Director for Instruction
Virginia Rehabilitation Center for the Blind and Vision Impaired
401 Azalea Avenue, Richmond, Virginia 23227
Telephone: (804) 371-3052
Email: amy.phelps@dbvi.virginia.gov
Supporting Families Regional Collaborative Summit
September 1-2, 2026

Registration is now open for the 2026 Community of Practice for Supporting Families Regional Collaborative Summit! will be held virtually on September 1st and 2nd. Join the Summit this September to learn from peers and professionals about how to bolster your communities of practice for supporting individuals with disabilities and/or autism (ID/A) and their families. The conference is free to attend for individuals and families. Read More about Registration is now open for the 2026 Community of Practice for Suppor…

The DeafBlind Camp of Virginia
September 10 to 13, 2026
Camp Easterseals in New Castle, VA, near Roanoke
Contact Charity Reid-Davis for more information:
Charity Reid-Davis
DeafBlind Specialist, DeafBlind Services
Department for the Blind & Vision Impaired
1076 Jefferson Hwy, Staunton VA 24401
540-324-2411 (VP)
charity.reid-davis@dbvi.virginia.gov

Bain 50+ Center
Cynthia L. Ingraham, EdD, to present in Columbia, Maryland, on October 6th to share information about the Helen Keller National Center’s services for older adults with combined vision and hearing loss.  

Contact Elaine Widom for more information:
Elaine Widom
Seniors Together Program Assistant
Howard County Office on Aging and Independence
Department of Community Resources and Services
5470 Ruth Keeton Way
Columbia, MD 21044
410-313-7353 Voice
ewidom@howardcountymd.gov
Outside the Box Conference & Family Learning Weekend!
October 9-10, 2026
Christiana Hilton in Newark, DE

Two days of learning, collaboration, networking, and family engagement focused on supporting individuals who are deafblind and those with complex communication and sensory needs.

Registration is now open for both professionals and families, with early bird pricing available through July 17.

Registration will close on September 4, 2026!
For more information, contact Erin Kline:
Erin Kline | Program Coordinator
Delaware Statewide DeafBlind Program
630 E. Chestnut Hill Rd, Newark, DE 19713
Office: 302-454-2305 | VP: 302-294-2293 | Fax: 302-295-8974
erin.kline@christina.k12.de.us | www.delawareoutreach.org
2026 Pennsylvania Autism Training Conference
November 4-5, 2026

The Office of Developmental Programs (ODP) invites you to save the date for its 19th annual Pennsylvania Autism Training Conference (PATC). The conference will be held virtually with an interactive schedule on November 4th and 5th of 2026. Read More about The Office of Developmental Programs (ODP) invites you to save the dat…

Virginia Association of the DeafBlind (VADB)

Meeting will take place at the Department of Aging and Rehabilitative Services,

5620 Cox Road, Glen Allen, VA
November 7th from 10 am to 3 pm.  
Contact Elizabeth Spiers for more information:
Elizabeth Spiers
Director, DeafBlind Services
Virginia Department for the Blind and Vision Impaired
397 Azalea Avenue
Richmond, Virginia 23227
804-325-1282 Voice/Videophone
804-371-3133 Voice/Captel
804-371-3157 Fax
800-622-2155 Toll Free
Email:  elizabeth.spiers@dbvi.virginia.gov

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Hello from Region 4A!

Updates from David Volper, Regional Representative for FL, GA, AL, MS, and VI. Welcome to the Southeast Region 4A section of the newsletter! We are excited to share upcoming highlights for the DeafBlind Community!

Southeast A – Helen Keller Services

In Alabama:

The 2026 Deaf Festival will be held in Talladega, Alabama on October 31st, 2026, at the Alabama School for the Deaf. Please check in with the Alabama Institute for Deaf and Blind (AIDB)-Talladega Regional Center Homepage regularly for additional updates at this link, AIDB Homepage or contact Sybil Garrett via email garrett.sybil@aidb.org.

The quarterly Alabama Institute for Deaf and Blind DeafBlind Coalition meeting will take place at 1105 Fort Lashley Avenue, Talladega, Alabama from 10am to 12pm CST on August 27th. If you are interested in attending and you need transportation and accommodation, please reach out to Sybil Garrett via email garrett.sybil@aidb.org.

In Georgia:

A milestone! Please hear from the first DeafBlind candidate to run for the Georgia House of Representatives: “My name is Derrick Tuff, and I recently ran for the Georgia House of Representatives. My campaign was historic because I was the first DeafBlind candidate to run, but more importantly, it reminded me that DeafBlind people belong in spaces where decisions are made. The journey was not easy, especially when communicating in person and navigating unfamiliar environments. I didn’t win, but I received 15% of the vote which is good for a first-time candidate! Still, I learned that courage is not waiting until everything is perfect; it is believing you can keep going anyway. I want to encourage every DeafBlind person to pursue the goals that matter to them, even when the path feels uncertain. Our perseverance, independence, and belief in ourselves can open doors for us.”

The Georgia DeafBlind Access of the South (DBAS) has formed a committee to plan a retreat scheduled for Fall 2027. For more details on the upcoming retreat, please visit their website! DeafBlind Retreat Georgia.

The Georgia Association of the DeafBlind (GADB) is developing a ProTactile Immersion workshop for this coming fall 2026. For more information about GADB and DBAS events this coming summer and fall, please contact DBAS President Kevin Gdovin at DBAS@gcdhh.org.

The Georgia Center of the Deaf and Hard-of-Hearing (GCDHH) will host a variety of events this coming summer 2026 in August: Atlanta Braves Deaf Awareness Night, and Silent Fingers Workshop. Read more at gcdhh.org/news.

In Florida:

Welcome to Ace the Phenomenal’ s adventures along with his human, Theresa who is DeafBlind! Yup, Ace is a dual-career guide dog who has his own blog! Come and check out his adventures and visit his site at Ace’s Blog.  

On August 8th, the Florida DeafBlind Association (FDBA) will host ProTactile Rocks at Starbucks, occurs every 2nd Saturday of the month at Happy Brew in Jacksonville, learn more at FDBA News.   

In Mississippi:

The DeafBlind Community of Mississippi (DBCM) will release their upcoming summer and fall social events schedules via their website and social media. The DBCM will have a bowling and lunch event on August 8th followed by a lunch at the LeFleur State Park on September 19th from 10am to 3pm CST at Pavilion 4 and then we will be at the Mississippi State Fair in October! For further details, please visit their links for updates! DBCM News or email Andre Jarreau at dbcm@earthlink.net.

The upcoming Southeast Regional Institute on Deafness (SERID) Conference will be held in Biloxi, Mississippi from October 26ththrough 30th 2026. All health professionals, employers, consumers, educators, and anyone interested in supporting the Deaf / Hard-of-Hearing / DeafBlind community are welcome to attend! For more information, please visit the
website, SERID 2026 Conference.

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Southeast 4B Regional Update  

Welcome to our Southeast Region 4B! It’s been an exciting and productive year across Kentucky, North Carolina, Puerto Rico, South Carolina, and Tennessee. Here are just a few highlights from our work and collaborations:

Southeast B – Helen Keller Services 

North Carolina

NCRID 2026! Written by Ashley Benton, Director of Field Services

At the North Carolina Registry of Interpreters for the Deaf (NCRID) Conference June 25–27, 2026, HKNC partnered closely with the NC Division of Services for the Deaf and Hard of Hearing (DSDHH) to offer two collaborative workshops in recognition of DeafBlind Awareness Month. 

The DeafBlind Experiential Learning Activity, developed with the NC DeafBlind Interagency Team, brought together staff from multiple agencies to provide interpreters with hands-on simulations and shared perspectives. A separate ProTactile 101 workshop featured presenters who participated in the ProTactile Language Interpreting Institute, working together in small groups to teach core principles. 

These efforts reflected a strong cross-agency and community partnership focused on supporting interpreters in building skills, confidence, and deeper connection when working with DeafBlind individuals.

Image Caption: Marilyn Trader (L)  and Ashley Benton (R) making an impact at the North Carolina  Registry of Interpreters for the Deaf (NCRID) Conference

Image Caption: Group of presenters/trainers at the North Carolina  Registry of Interpreters for the Deaf (NCRID) Conference

HKNC DBIE Experience Written from A Mother’s Perspective

Moriah “Mo” participated in a DeafBlind Immersion Experience (DBIE) last Summer 2025. The experience was such an amazing opportunity for Moriah and our family! We loved seeing Helen Keller National Center staff, local school support, NC DeafBlind Project, and NC Division of Services for the Blind all come together to collaborate and partner to give Moriah opportunities to get into the community and explore different job opportunities. We also greatly benefited from them being in our home and helping us learn more about strengthening his independent living skills and exploring different resources to help with this.

This experience helped create a deeper collaborative partnership among all these providers, which has positively impacted Moriah’s school experience. During the DBIE, Moriah was able to go to the NC Library for the Blind to learn about their services and get a feel for different jobs there. Out of all the experiences that week, the library was his favorite. Moriah thrives with braille access and technology. The library experience provided opportunities for him to use both skill sets. This summer experience opened the door for him to be able to work at the library to get his school employment hours/credits this year. Moriah also hopes to work a few hours over the Summer to keep his skills sharp while on summer break. It is especially important to us that Moriah has meaningful work experience that he enjoys! The DBIE gave Moriah the freedom to explore different employment options and decide which he enjoyed the most. This experience equipped him with confidence that he can work and do something that he enjoys while highlighting his amazing skills! 

We are thankful for the HKNC’s DBIE program and how it continues to build support and opportunities for our son and family a year later! We look forward to continuing to partner with these providers as we think about transitions after high school!

                Image Caption:  Moriah scanning open Braille Book.

Tennessee Spotlight

My Story by Jeffrey Voss

Image Caption: Jeffrey Voss and Izzy, Jeffrey’s companion dog.

My name is Jeffrey Voss. I am DeafBlind, I want to share my story.   I was about 8 years old, I still had some vision and hearing. I wore hearing aids and learned to speak. I also learned sign language when I was younger, but later I stopped using it because I wanted to communicate mostly by speaking and using my hearing.

As I got older, I received cochlear implants and used them for about 30 years. During that time, I attended a technical college and learned woodworking and cabinetmaking. I also enjoyed carpentry, electrical work, plumbing, and building many different projects. Working with wood has always been one of my greatest passions.

In 2014, I attended the Helen Keller National Center (HKNC), where I learned new skills for living with deafblindness. One of the best parts was meeting other people who understood the same challenges I was facing.

Over the years, my eyesight continued to get worse. By 2019, I had lost all my vision and could only tell the difference between light and darkness. Today my hearing has continued to decline, so I am learning sign language again. Looking back, I understand now how important sign language is. I am thankful that my older sister knows how to sign, and my parents know some ASL.

I live independently with my service dog, Izzy. She is a loving companion who helps keep me safe and gives me confidence every day. I also enjoy making woodworking projects that I can share with others. If someone would like a handmade piece, I would be happy to answer questions or create something special.

Most importantly, I have a passion for sharing Jesus Christ with people who are blind and DeafBlind. People sometimes ask why we were born this way. My faith teaches me that God created each of us with purpose. Even through difficult circumstances, He loves us and has a plan for our lives. One of my favorite Bible passages is John 3:16-18. It reminds me of God’s love and the hope we have through Jesus Christ. Thank you for taking the time to read my story.

Jeffrey Voss VossWater2@icloud.com 
Jeffrey Creations by Jeffrey Voss

If someone would like a handmade piece, I would be happy to answer questions or create something special, email at VossWater2@icloud.com 
                   

Image Caption: Custom woodwork hand-held mirror.

Image Caption: Customized letter opener with match pen.

Image Caption: A unique creation using purple wood, a complete desk set, key chain, and a perfume bottle.  

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Summertime fun means Conferences, Connections, Collaborations and Communication! 

At Helen Keller National Center (HKNC), our mission is to enable individuals who are DeafBlind to live, work, and thrive in their communities—and over the past few months, the North Central Region has been actively advancing that mission through partnership, training, and innovation.

Conferences: USH2026 Connections Conference

The entire HKNC Region 5 team traveled to Bloomington, MN for the USH2026 Connections Conference to network, learn, and present hands-on demonstration of tools, techniques, and tips for navigating life with combined vision and hearing loss.

The team networked with families, researchers, and other DeafBlind agencies and organizations during the American Association of DeafBlind Association sponsored Wine and Cheese Meet & Greet on Friday, attended sessions and hosted the HKNC exhibit table on Saturday, and presented. 

Photo caption: NorthCentral team at the USHER2026 conference in Minneapolis. (L-R): Kacie Weldy, Laurie McBride, McKenna Liesman, Genevieve Barnes, Joann Rushing

Connections: FATE Forward – A DeafBlind Advocacy Workshop Mini-Series hosted by National Family Association for DeafBlind (NFADB)

In the spirit of DeafBlind Awareness Week, of “breaking barriers and building bridges,” we want to do exactly that for our fellow families! We want advocacy to feel accessible, supported, and real. This September, we are sharing a series of simple, practical workshops developed BY families FOR families, focused on equipping you in current advocacy initiatives happening right now in real time.

Our goals are simple:  

•        Honor your lived experience

•        Connect that experience directly to policy change

•        Help you feel empowered—not intimidated

Built around busy families:

•        2 Foundational training meetings

•        1 Hands on writing workshop

•        Optional drop-in practice meetings

•        Ongoing support along the way from experienced families who advocate!
  

Your voice is powerful and needed!  Register to learn more and join us!
NFADB: FATE Forward Registration
Collaborations: DeafBlind Awareness Week Activities and Celebrations

The DeafBlind community came together for DeafBlind Awareness Week from June 26 through July 1, 2026, to celebrate and in honor of Helen Keller’s birthday on June 27th. 

Many organizations across the North Central Region also celebrated DeafBlind Awareness week with celebrations, gatherings, and awareness webinars. 

To see more activities that were happening, check out HKNC’s DeafBlind Awareness Week 2026 page.

Communication: Co-Navigator (CN) /Support Service Provider (SSP) Program successes in both Indiana and Ohio.   

The new organization, Hoosier Deafblind Alliance has formed and successfully requested grant funding from the Indiana Statewide Independent Living Council for a restart of much needed CoNavigator/ Support Service Provider pilot program.  The program will start throughout central Indiana with anticipated expansion into other areas by the 4th year of the project.

Are you DeafBlind and interested in CN/SSP Services or want to learn more?  Reach out to: hoosiersdeafblindalliance@gmail.com for more information.

The Ohio CoNavigator/Support Service Provider program successfully retained ultimately doubled the funding available for the next two years.  After an unexpected closing of its program management organization in November 2025, the community came together and successfully advocated to retain the funding and is collaborating with Opportunities for Ohioans with Disabilities (OOD) in securing a new program management organization.  The Request for Proposals process has been initiated and is set to close July 20, 2026.

Kacie Weldy, Regional Services Coordinator
Serving MN, WI, MI, OH, IN, & IL
Contact: Phone – 516-269-1233 voice/text
 Email – kweldy@helenkeller.org

Learn more about the North Central Region team on the HKNC website:
https://www.helenkeller.org/locations/north-central-region/

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The Search for a New Regional Representative

It is with a heavy heart that Leanne Cook announced her resignation from Helen Keller National Center. During the transition as we search for a new regional representative your state contacts are as follows:

Texas: Chad Metcalf
Louisiana: David Volper
New Mexico: Jonathan Pringle
Arkansas and Oklahoma: Ashley Benton, abenton1@helenkeller.org

If you’d like to apply for the position, please do so here: Region 6 Regional Representative Job Posting

Waiver Services and Generators

For individuals with disabilities, extended power outages can create significant health, safety, and communication challenges. In some circumstances, waiver services may be used to fund the purchase and installation of generators when they are necessary to support critical medical, functional, or safety needs. Discussions among disability service providers and waiver specialists across the region note that generators may be considered when an individual relies on electrically powered equipment or technology that is essential to their health, independence, or ability to remain safely in their home.  

Coverage is not automatic and varies by state and waiver program. Approval generally requires documentation demonstrating the individual’s need and may require supporting recommendations from licensed professionals such as physicians, occupational therapists, or physical therapists. In some waiver programs, generators may be authorized as a home modification rather than as assistive technology or adaptive equipment.

For DeafBlind individuals and others with complex disabilities, backup power can be particularly important for maintaining access to communication devices, medical equipment, environmental controls, and other supports during emergencies. Individuals, families, and service coordinators should work with their state’s waiver program to determine required documentation and available funding options. Generators can be a valuable tool in supporting emergency preparedness, community living, and continued independence when justified by an individual’s assessed needs.

Oklahoma DeafBlind Camp

The SHEP (Sight-Hearing Encouragement Program) DeafBlind Camp is multi-day retreat in Oklahoma designed to empower DeafBlind individuals. The event offers outdoor adventures, tactile signing workshops, and essential socialization guided by Support Service Providers (SSPs). SHEP is based in Oklahoma City but welcomes campers from all across the region. Camp caps at 30 participants, with registration already available.

October 15 – 18, 2026
Spring Valley Ranch in Eucha, OK
Cost: $320
Theme: “Explore, Connect, Shine”
SHEP Registration
Louisiana Interpreter Standards and Registry

Interpreters working in general community and educational settings are required to register under standards that became effective May 20, 2026. To provide interpreting services in Louisiana, interpreters must meet the new standards, or show active progress toward meeting them. Louisiana Commission of the Deaf (LCD) has also just released the online registration system that allows sign language interpreters to submit documentation demonstrating compliance with Louisiana’s minimum qualification standards and registration requirements.

Additional registration categories are still being developed. Court interpreter standards are expected to be released in Fall 2026 in partnership with the Louisiana Supreme Court Office of Language Access. Interpreters currently registered with the Supreme Court should maintain that registration and apply for Generalist Registration through LCD. Deaf interpreter standards are also expected in fall 2026, and Deaf interpreters are encouraged to create a registry profile by July 1, 2026.

For questions about interpreting qualifications or online registration contact LCDInterpreterRegistry@la.gov. Learn more about this at the Louisiana Commission of the Deaf website Louisiana Commission of the Deaf  

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Hello from the Great Plains Region serving Iowa, Kansas, Missouri and Nebraska.  You can connect by calling 913-677-4562 voice or 913-227-4282 videophone or email Beth at bjordan@helenkeller.org.

Spotlight: Adriene P is a Social Influencer

I want to introduce you to a social influencer on TikTok who happens to be DeafBlind.  She creates point of view videos because she has a story to tell.

Adriene was born with complete bilateral cryptophthalmos when the skin of the forehead covers the eye sockets resulting in blindness. Additionally, she wears bilateral hearing aids for sensorineural hearing loss.  

Adriene is a single mom of two young adult women.  She’s very capable but because of her appearance, spends time educating others and advocating for her rights.  

There have been two documentaries about Adriene’s story.  The first is a YouTube video as part of a series called “My Extraordinary Life.”  It’s a short eight-minute video.  

Meet Adriene.  Adriene on My Extraordinary Life

You can also follow Adriene on TikTok by searching for her handle, @sapphireprincess85.

Legislative Victory for DeafBlind Missourians

Many people worked to recommend changes to the Support Service Provider (SSP) legislation that removes the funding cap and allows the program to seek additional funding sources if needed.  It began as two separate bills in the House and the Senate and the language of both bills was added to House Bill 1840 that was sent to Governor Kehoe for his signature.  

Likewise, a second piece of legislation was merged into that same House Bill 1840 that will create a Communication Access Service (CAS) program/funding that will be managed by the MO Commission f/t Deaf & Hard of Hearing (MCDHH).  The CAS will cover sign language interpreting, real-time captioning (CART) and Support Service Providers (SSPs) for eligible Deaf, hard of hearing, and DeafBlind Missourians.  This is separate from the state’s existing SSP program run through DEAF Inc.  The legislation was designed to ensure government entities and agencies offer these vital services.  

The next step will be for MCDHH to develop policies and procedures for the new Communication Access Fund in the next year when the Governor will add the funding to next year’s budget.  If you have questions about the new CAS fund, you can contact MCDHH via email at mcdhh@mcdhh.mo.gov or by calling 573-355-9350 (voice or videophone) and watch their website for additional information.  MO Commission for the Deaf and Hard of Hearing.

Iowa and Kansas Governors Sign Proclamations for DeafBlind Awareness Week

We were pleased to learn that Iowa Governor Kim Reynolds signed a proclamation recognizing DeafBlind Awareness Week in June 2026.  She acknowledges that approximately 10,000 Iowans live with combined vision and hearing loss.  

In Kansas, Governor Laura Kelly responded to our request with an in-person opportunity to honor and recognize DeafBlind Awareness Week at the Capitol building in Topeka.  The proclamation notes that approximately 23,238 Kansans live with combined hearing and vision loss.  Fittingly, the Governor signed the proclamation at a desk that was built decades ago by students at the Kansas School for the Deaf.

Image description: Four DeafBlind Kansans and their family members stand behind Kansas Governor Laura Kelly, who is seated at a large wooden desk holding the signed proclamation honoring DeafBlind Awareness Week. Also present are Robert Cooper, Director of the Kansas Commission for the Deaf and Hard of Hearing, CoNavigators, and HKNC staff members Michele McClain and Beth Jordan. Everyone is smiling. Three of the women are holding white canes, and one man is wearing a monocular device on his eyeglasses. An American flag and a Kansas flag are in the background.

Meet Ashley Benton, HKNC Director of Field Services

Since reintroducing our regional HKNC newsletter, I’ve introduced you to everyone that works on my team including Michele McClain, the administrative assistant and Laurie McBride, the employment specialist in Iowa.  For this issue, I’d like you to get to know my supervisor a little bit better. Read more about Ashley Benton.

Image description: A Caucasian woman with platinum, chin-length hair and glasses is smiling directly at the camera.  She is wearing a white blouse with a tan parka sweater over it. She is standing outside on a grassy hillside with a view of a lake behind her.

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Serving Arizona, Colorado, North Dakota, South Dakota, and Utah

Region 8 Updates

This has been an eventful quarter for Region 8. We were excited to support several students as they attended our Summer Youth Vocational Program, while others participated in our newly introduced Summer Discovery Program. This pilot program was designed for students who would benefit from a shorter, individualized evaluation rather than the full Summer Youth Vocational Program, providing an additional pathway to experience HKNC services and build skills.

Our team also had the opportunity to attend the American Deafness and Rehabilitation Association (ADARA) Conference in Salt Lake City, where we connected with colleagues, shared resources, and strengthened partnerships that support individuals who are DeafBlind throughout our region.

This summer also provided an opportunity to support Utah’s DeafBlind Awareness event. It was  held at the National Ability Center. The family-focused event featured a variety of inclusive recreational activities, including tandem biking, rock climbing, and archery. The Utah Schools for the Deaf and the Blind (USDB) served as a primary sponsor, helping create an experience that was both educational and entertaining while actively engaging participants and their families. Events like these strengthen community connections, increase awareness of DeafBlind services, and celebrate the abilities of DeafBlind individuals.

As you enjoy the summer season, find a cool place in the shade, relax, and explore the articles in this edition to learn more about the exciting work, partnerships, and accomplishments happening throughout Region 8.

Arizona

National Federation of the Blind of Arizona (NFB)– 80th Annual State Convention

Dates: August 20–23, 2026

Hotel: Sheraton Hotel and Suites. Located at 5151 E Grant Road, Tucson, AZ, 85712

All attendees must register to take part in the in-person convention activities.

Pre-registration is now open until August 14, 2026

All meetings and activities will take place in the Sheraton Hotel and Suites.

Please contact Donald Porterfield with questions or concerns about reserving a room at nfb.az.president@gmail.com. You can also call the agency NFB of Arizona hotline: 844-866-3229. For more information about the conference,  visit their site for more information: AZ NFB 2026

Convention: Registration  
Hotel: Sheraton Hotel and Suites

Colorado

The Colorado Commission for the Deaf, Hard of Hearing, and DeafBlind has moved from cddhhdb.colorado.gov to  Sense Colorado

Summer Festival

Saturday, August 29, 2026, 10:00 a.m.–12:00 p.m.
Red-Tailed Hawk Park, 23701 E Hinsdale Way, Aurora, CO 80016
Enjoy splash pads, playgrounds, jumbo yard games, cornhole, and family activities. Flyers are available in English and Spanish.

RSVP and event information: Summer Festival
KissFist Mural Fest

September 19–20, 2026
NoBo Art Center, 4929 Broadway Unit E, Boulder, CO 80304
Volunteer-run nonprofit festival celebrating Deaf art and culture. Free to attend.

Learn more: Kiss First

Utah

Utah Council of the Blind Statewide Training Conference
September 11–12, 2026

Riverwoods Conference Center
615 Riverwood Pkwy, Logan, UT 84321

Registering for the Conference:
Conference registration is $60, and there will be no partial registration options.
The fee includes:
Conference admission
Two box lunches
One evening reception
One banquet meal
Registration and transportation for the conference can be made by following this link:              

 UCB Statewide Conference 2026

Or call the agency’s office: 801-245-9264 – Monday – Friday 10:00 a.m. – 5:00 p.m.

Dakotas

Dakotas AER Chapter Conference
October 13, 2026 – October 15, 2026
Location: 605 14th Avenue SE, Aberdeen, SD 57401
Hotel: 901 6th Ave SE, Aberdeen, SD 57401
Register: Dakota AER

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DeafBlind Awareness Month Spotlight:
Julian Castaneda’s Journey to Independence

Featuring ASL video clips of Julian sharing his story in his own words.

June was DeafBlind Awareness Month, a time to highlight the strength, resilience, and achievements of DeafBlind individuals across our communities.

This month, we are proud to share the story of Julian Castaneda, whose journey reflects both the challenges and the remarkable successes made possible through determination, community support, and accessible employment. Julian found employment through the California services Program (CSP) Team, and Chad Metcalf, his HKNC Regional Representative. Together, they provided training, guidance, and long‑term employment support that helped Julian build a life of stability, independence, and pride.

Meet Julian

Photo caption: Julian wearing his safety work vest. The back showing the label “Deaf, please tap shoulder.”

Julian began his employment journey in 2020 working at Amazon Fresh. When the company announced it would be closing in 2026, he faced an unexpected setback. “I was quite disappointed… I enjoyed working there,” he shared. Rather than stepping back, Julian stepped forward. He transitioned into warehouse work, taking on overnight shifts that were physically demanding but offered new opportunities for growth.

Building Independence Through Daily Commitment

Julian’s workday begins early—often at 4:00 AM, as he takes two buses to reach the warehouse. “It’s honestly not bad… I get there around 5:40 AM,” he explained. He also uses ACCESS services and occasionally receives rides from coworkers, neighbors, and friends.

This combination of resourcefulness and community support has helped him maintain consistent employment and independence.

Safety, Accommodations, and Workplace Inclusion

At work, Julian wears a vest labeled “Deaf/Hard of Hearing,” which helps coworkers know to tap him for attention. “People are good about that,” he said. Some coworkers even sign basic ASL phrases, creating a more inclusive environment. Julian feels safe navigating the warehouse and describes the work as “not terribly hard, not terribly easy… about average.” His positive attitude and patience help him manage the physical demands of the job.

A Life Rebuilt With Strength

Julian has faced significant personal loss, including the passing of his mother two years ago. Despite this, he has built a stable life, managing rent, bills, and caring for his dog. “It’s like a new life… very serious,” he reflected.

His mother taught him budgeting and credit management, skills he now uses daily. “Now it’s my responsibility,” he said. This year marks five years and three months of Julian’s employment with Amazon. He also receives benefits, including a 401(k). “I even have a 401 as well,” he shared proudly. His dedication and consistency  caught the attention of Spanish‑language television channels, who interviewed him about his journey and success.

Julian’s Advice to Other DeafBlind Job Seekers

Julian encourages others to pursue employment and advocate for their needs. “Make them aware of your accommodation needs… they will put you in the right spot,” he said. He also praised Amazon for hiring many Deaf and DeafBlind employees and providing supportive environments.

Why Julian’s Story Matters

Julian’s journey is a powerful reminder of what is possible when accessibility, training, and opportunity come together. Through the support of the HKNC California CSP and through his own resilience, Julian has built a life filled with purpose, stability, and pride.

As we honor DeafBlind  Awareness Month, we celebrate Julian and the many individuals whose stories matter.

CSC hosts Deaf-Blind Lunch Brunch in Hawaii:

The Comprehensive Service Center’s (CSC) Deaf-Blind Lunch Bunch has two upcoming Saturday events for adults who are Deaf-Blind, along with invited guests, volunteers, and professionals.

• • August 29, 2026 from 4:30–7:00 PM HST for Karaoke & Socialization, and

• • September 19, 2026 from 9:00 AM–12:00 PM HST for Usher Syndrome Awareness Day.
    

These events offer potluck-style meals, social connection, resources, and a welcoming space for community support. Private one-on-one appointments are also available for individualized help with mail, forms, applications, transportation instructions, assistive technology, and problem-solving access barriers. To RSVP or make an appointment, contact CSC at (808) 369-0499 voice, (808) 284-3551 voice/text, or (808) 447-2044 for ASL users.

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Greetings from Region 10!

My name is Kirsten Hille, Northwest Regional Representative for the Helen Keller National Center (HKNC), serving AK, ID, MT, OR, WA, and WY.

Northwest – Helen Keller Services

Portland, Oregon – May 2026 

The Oregon DeafBlind Project & Columbia Regional Inclusive Services

The Oregon DeafBlind Project partnered with Columbia Regional Inclusive Services (CRIS) by hosting a resource fair for families in the metro area on May 7, 2026. This is an annual event for students and families to attend and meet with organizations in the field.

I attended in person and represented HKNC at our booth. I had the pleasure of meeting  with families, students, and other organizations to discuss  the services that HKNC provides

Photo Caption: HKNC table (L). The Oregon DeafBlind Project table (R), seated at this table is Darlene Daniels – Teacher on Special Assignment (TOSA) and the Technical Assistance Lead

iCanConnect (iCC) – Alaska

iCanConnect in Alaska is well underway, with HKNC recently assuming operation. Ryan Odland, the HKNC Associate Executive Director, Jasmine Anello-Reyes, interpreter, and I were in Alaska for a packed visit the first week of June. We met with two participants to provide training on communication equipment and with several organizations to raise awareness of this wonderful technology program for people who are DeafBlind.  We also met with potential contracted trainers for the program to deliver training on phones, computers, and tablets in people’s homes. The iCC program’s purpose is to assist people who have vision and hearing loss to communicate with people not in their home (distance communication) through functions like making phone calls, sending texts, email messages, and video calls outside their home (distance communication) through functions like making phone calls, sending texts, email messages, for example.  

Apply for Free DeafBlind Equipment in Alaska 
Not in Alaska? Find your state 

DeafBlind  Equipment Program ApplicationDeafBlind Equipment Distribution Program

Photo caption: L to R: Jasmine Anello-Reyes, interpreter; Kirsten Hille, Northwest Regional Representative; Ryan Odland, Associate Executive Director

White Cane Safety Day

Thursday, October 15, 2026

Did you know that this event was first recognized in 1964 by President Lyndon B. Johnson? This day celebrates the achievements of people who are blind or have low vision and the white cane, a tool of independence.

Read more! White Cane Safety Day – Wikipedia

Deaf Nation Expo – Seattle WA

When: Saturday, October 17, 2026
Where: Seattle Center Exhibition Hall
Open to the public: 9:00 AM – 5:00 PM
Attendance is FREE
Registration  is required 2026  DeafNation Expo Seattle – DeafNation

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